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How to hold a Passover seder with an elderly relative suffering from dementia, including Alzheimer's
- Dr. Nati Blum
- Published on the 'JDN News' website
- No comments
Alongside the joy and celebration, quite a few families face a complex challenge around the Seder table.
How do you integrate a family member with dementia without compromising their dignity – and without giving up the holiday atmosphere?
Seder night is one of the highlights of the Jewish calendar. Around a beautifully set and lit table, family members gather, sing, tell the story of the Exodus from Egypt, and pass on the tradition from generation to generation. But for families where one member of the household is dealing with dementia and Alzheimer's, the experience can be complex, and sometimes even stressful and fearful.
The transition from a quiet, familiar environment to a noisy, crowded event, the abundance of conversation, the fast pace of the Haggadah, and the expectation of active participation can all create emotional and cognitive strain for the person dealing with dementia and Alzheimer's. The result may be confusion, fatigue, and sometimes even severe emotional reactions.
It's not an easy challenge for family members either. The desire to maintain the dignity of the loved one, alongside the desire to experience the holiday with full family joy, and sometimes also dealing with stares or questions from those around them.
To help cope properly, the EMDA Association has compiled a number of important recommendations. One of the main recommendations is to adapt the experience to the person's abilities. In many cases, it is worth considering holding a "small" and limited "seder" at the family member's home, in a familiar and relaxed atmosphere. This way, he can be allowed to participate in the holiday without being exposed to too much stress.
Additionally, it is important to inform family members about the situation in advance, in a respectful and simple manner. When those around them understand the challenge, they know how to behave sensitively, demonstrate patience, and avoid expectations that are not in line with reality.
The physical environment also has significance. Therefore, it is recommended to provide a comfortable place to sit next to close family members, and even prepare a quiet corner in advance that will allow for a break in case of congestion.
During the Seder itself, it is a good idea to keep communication simple and clear. Short sentences, repeated explanations of the steps of the Seder, and direct address by the person's name all help maintain a sense of belonging and understanding.
It is also important to reduce environmental stress as much as possible. Too much noise, music, or stimulation can be overwhelming. Short breaks during the evening, going to a quiet corner, or having a calm conversation can significantly improve the feeling.
When emotional reactions occur, remember that they are due to the difficulty and not intentional. A calm response, empathy, and sometimes even a hug, are the most effective tools for calming.
Even after the Seder, the task is not over. It is important to allow the person time to recover in a familiar and calm environment. If they are staying in a place that is not their home, it is worth trying to create a sense of familiarity for them through personal belongings, comfortable lighting, and a quiet atmosphere.
A positive conversation after the event, even if the memory is partial, can leave a good feeling. It's good to remind him that he was a part of the holiday, how happy they were with his presence, and how important he is to the family.
Quite a few families tend to "hide" the situation, out of a desire to protect their loved ones or avoid unpleasantness. However, experience shows that it is precisely gentle and honest openness that reduces tensions. When family members are aware of the situation, they tend to show understanding, patience, and consideration.
Seder night can and should be a meaningful experience even for a person dealing with dementia and Alzheimer's. Proper preparation, sensitivity to the smallest details, and most importantly – a lot of patience and love, allow us to integrate what is dear to us into the holiday, with respect and calm.
But more important than all the recommendations we have given, remember to be aware and vigilant of elderly family members. See if there is a change in behavior and have it checked out professionally. Early detection provides the possibility of different types of treatment that can certainly delay the development of the symptoms of the disease, and allow the patient a higher quality of life.
We know it's not easy, but with planning and attention to detail it's definitely possible. If you need help, advice, or additional support, you can find more tips on our Facebook page, and we at EMDA are available to provide free advice at our support and advice center, by calling *8889.
Wishing you all a happy, peaceful and meaningful Passover.,
Dr. Nati Blum, CEO EMDA Association
Dr. Nati Blum is CEO EMDA Association and holds a PhD in Psychology from the University of Sacramento. Her doctoral dissertation focused on face-to-face group therapy versus virtual group therapy. In her role at EMDA, she harnesses her professional and managerial experience to lead efforts to improve the quality of life of those dealing with dementia, promote their rights, and raise public awareness of the phenomenon in Israel.
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